Adios' bad health, you're gone with 2009.

Well I am pretty sure that I got the first good news today, out of all of 2009. Ha, my cultures came back for the mycobacterium. It isn't the exact "MAC" bacteria that they thought it was, but it is a mycobacterium colonieum or how ever you want to spell that.... I am actually not 100% sure what the doctor said, because I was so excited to hear that my cultures came back. They are going to put me on the RIGHT antibiotics after the 1st of the year. I can't wait to stick it to the man with this nasty gnarly bug. Seriously, it's worn me down crazy style this year.

I am going to be keeping my broviach in my chest, because the doctor said it will be 3 months of antibiotics, of what kind, I don't know just yet. But I'd rather be healthy for when Nick comes back home to me, than be sicker. So it's a dirty job, but someones gotta do it!

I finally got my scale up and running, after almost a week. I don't exactly know how accurate it is, but right now I am weighing in at about 93.5 lbs, so my goal for now is 96.0 by the 10th. I think I can do it, or so I hope... gotta get some meat back on these lil bones of mine.

That's about all I got for now, I've been feeling good, or well, O.K. for the past couple of days, nothing crazy.. so yeah :) Till next time loverbums.


xx

Between yesterday and today, i've been having frequent fevers. I've been having fevers for a while now (2 months), but the doctor said they should start fading away... They weren't as often for the past week, but I think i've taken 3000mg of acetaminophen in less than 24 hours. Plus I am on antibiotics, I hope my liver is ok.

Otherwise, I've been holding up. Christmas is just around the corner so I am trying to stay in a good mind frame. If anything else happens, i'll make sure to post ;). Let's hope not... unless it's good =]

It's almost 5am, and I'm still awake writing a blog.

Lately i've been feeling like a tether ball between my doctors. One wants this, one doesn't, one doesn't like the way the other is doing something, vice versa.... I am just the one getting the punishment for it... no fair.

Anyway, I went to UCD on Weds and I weighed a whopping 99 lbs, watch out Vin Diesel, here I come ;) Naahh but I did gain weight since I was in the hospital 2 weeks ago (a whole 5 lbs).

I am a little pissed at myself because I forgot to ask what my PFT's were, but it's probably better I don't know, considering i've been sick lately, and it would just put me down if I did. I'm imagining somewhere in the 40's though. Before my whole GBS thing in Jan my borderline was around 60-70, so my goal for NOW is 55. Let's hope I get there soon.

We talked about the Mycobacterium that I am culturing and if it is MAC or not, obviously the cultures are not fully grown yet, but if it does turn out to be MAC, it may be treatable on oral antibiotics, just a very long course... (maybe 18 months). If it is a different type, we may have to keep in my broviach and do some IV antibiotics.

As for now I am in the Azithro and Cipro, they took me off of the Primaxin, which was making me utterly sick. Hopefully we wont ever have to do that again. Ugh. I've never really had a bad reaction to antibiotics, besides Vanco, but that was just a rash.

I'm running less fevers now, I am taking the occasional Tylenol if I feel I am creeping up a fever, or something. I have my norcos for pain, and I am happy lol. That's about all as my health is concerned... so I guess I am going to... It's like almost 5am and i'm still up. Goodnight to anyone who reads this :) ! XOXO